How public are you about your Autism?
verity
Administrator, Citizen
in General ASD
Since you have become aware of you Autism, how willing are you to mention this to others? Who do you mention it to? Close family, extended family, close friends, general friends, explorers, General Practice doctors, specialist clinicians, civil servants, police, etc?
Do you mention it causally or under specific circumstances?
How has this changed over time? Are you more or less like to mention it?
What reasons do you attribute to these answers, and how strongly do you feel about it?
Comments
I wouldn't mention it to anyone except maybe a doctor who was treating or assessing me for another learning disability/neurological condition (at an auditory processing evaluation, for example). That's because the information might be relevant to the treatment/assessment and because such doctors are really the only people with sufficient medical knowledge to understand what autism is.
When I was desperate for effective care for IBS, I tried asking for a referral on the basis that GI issues were particular to autism and that a doctor who knew something about autism might be a better choice than the GI team I was currently using.
I mentioned it in a message when I was approached by an autistic person on a dating site. If I had that to do again, I'd wait until I'd met the person a few times.
It's pointless to tell anyone. Virtually no one knows enough about autism to properly contextualize the information. I've had a neurologist who specializes in autism tell me that my cognitive test scores are too high for me to be autistic. Also there seems to be a concerted effort in the medical community to deny the existence of autistic people who are not intellectually disabled or stereotypically non-speaking/socially unresponsive and significantly disabled.
It is slow process. Some are still stuck on Kanner's definition of Autism.
I do think this work both ways. Some are also in denial of the more challenging aspect of being on the spectrum, especially diminished or impeded functioning. It is important to have a high bar we should not write people off and we don't want communication and motor disorders to be seen as intellectual impairment (which is all too convenient when it comes to denying funding), but there are higher function folk have very little awareness fo the other side of the spectrum, and this compound some families' view that we should not comment on it. We are here talking about ourselves with full autonomy other aren't in that position.
I also had IBS. I have found that GFDF helps and and overall focus on physical an mental health. A side effect of GFDF as long as you don;t rely purely on packaged/processed food substitutes for everything is you tend to eat fresh meat fruit, and veg, if you weren't already doing so.
My birth and chosen family know, as do medical professionals that see me- both mental and physical health ones. The solicitor and others involved with the negligence claim my daughter started, over the falls I had,they know.
I try not to tell anyone besides my family unless I have to.