Saw the orthopaedic specialist on Monday
firemonkey
Citizen
My (s) daughter was with me. Of course the sod's law that you won't appear as bad as you can be at home occurred.Fluctuating condition!? I
could be referred for X-rays, but not much might be done as a result of
having them done. I got the impression that more would be done if I was
younger.
I decided against the X-rays. In the current situation it would've been selfish to have them done.
One interesting thing that came out of the appointment was that I have a long curvature of the spine. The length suggests it's been that way since at least my youth. My youngest niece had to have an operation for her scoliosis(medical name for it) because it was so bad. A referral for physio is going to be made.
I decided against the X-rays. In the current situation it would've been selfish to have them done.
One interesting thing that came out of the appointment was that I have a long curvature of the spine. The length suggests it's been that way since at least my youth. My youngest niece had to have an operation for her scoliosis(medical name for it) because it was so bad. A referral for physio is going to be made.
Comments
It's pain in my lower back.
More there/not there than moderate/severe
Having been told even if anything is found there's a high chance it won't be acted upon, I thought it would be pointless. The specialist never mentioned having the x-rays so the physio could do a better job.
Left leg still hurts today. Have been as mobile as I can be.
Leg is still bad. Couldn't manage a bath Tuesday evening because it was hurting too much trying to lift it into the bath. Didn't even try last night. Had a strip wash instead. (S) daughter has asked again for adaptations. First time she asked the response reeked of cynicism. Sadly that's par for the course. Physical problems get ignored for decades, and when you need help because of such incompetence and stupidity( previous mental health trust not this one) you have physio/OT staff not taking things seriously because after all -'he's just a psychiatric patient'.
This is what you get if you're a psychiatric patient and your physical health has been regarded as very much secondary to your mental health issues for decades and decades. My balance,coordination and gait has been dodgy for over 60 years, but it's not been seen as something to look into. OK to be strictly accurate there was one male nurse back in 1978 who said he could tell I was schizophrenic by the way I walk. That was a throwaway comment though.
First time I hit my head against the bedroom wall in doing so. For some reason that really affected my upper left leg and knee. Then the second time my legs gave way trying to get into bed. Both falls have resulted in what would be called ‘muscle pain’ according to my (s)daughter. They had to be called out again,as it was looking like I wasn’t going to be safe enough to say at home. The second time there was a Scottish man, and Welsh woman. When my s/daughter mentioned I had autism and very likely dyspraxia, the Welsh woman’s attitude became rather contemptuous. Even more so when I mentioned the schizophrenia. The Scottish man noticed my s/daughter had brought a wheelchair up to my flat. He wanted to see how I cope using the wheelchair. I coped reasonably well. Well enough to stay at home.
Had hoped for better sleep after no sleep for the last 36 hours or so. Wasn’t to be. Was in bed by 7.30 pm. Slept till about 10pm. Then woke up needing to pee. Managed to that, but doing it really exacerbated the muscle pain. I struggled to get the p/ks that had been left out for me and get comfortable. Had the urge to do another pee around 2.15 am. Managed to get to the toilet about 45 minutes later. After doing so I couldn’t face the struggle to get back in bed. So I got up.
An emergency team will be coming in 2x a day. to make sure I can eat etc. My (s)daughter will cover the rest,but she has an important job as a branch manager of a home care agency.
Waiting to be taken for x ray. I think the pain may be increased due to fear on my part. I'm prone to physical reactions to stress. The prime one being 6-24 hour flu like reaction.
My s/daughter is going to see about having power of attorney. My sister may be upset, but truth is she's often been very negative about my mental health problems etc, and hasn't seen me for well over 4 years. My brother has too many problems of his own to take it on.
I don't think it is wise for non- medical laymen to speculate where a pain originates from, how serious it is, if it's muscular or worse, only doctors should do that. Glad you are being x rayed now at least. I do hope you will receive the care you deserve.
Hopefully your s/daughter is able to get power of attorney (if you want that, of course). She seems to take very good care of you, and maybe professionals would listen a little more if she had more say in + more ability to advocate for your health.
I also get that fear/anxiety can make pain feel worse. I think it's the addition of focusing more on things + the brain wanting to make sure those things are noticed and addressed. Do you have anything you can easily do that relaxes you and/or distracts you?
My s/daughter has ordered an alarm pendant. No x ray as yet. They're doing their best to keep me out of hospital.